Sunday, August 23, 2009

Managing discouraging news....

Here's the news from Mary about Chris:

Hi Everyone,

Well we heard the results from the bone marrow biopsy today and they were not good. The leukemia cells in his bone marrow were still around 70%. They had been at 90% before he started the last round of chemo with the experimental drug (Ribovarian). The doctors said that the results were not good enough to continue with another trial. They also said that the leukemia cells did look different or had changed some since before this last round of chemo. I don't know if that is a good thing or a bad thing.

Dr. Torito is going to look into another different experimental procedure or drug trial that may be happening in the U.S. She said that Chris might have a chance getting into a new trial but we have no time lines on when that could or if it will ever happen.

So for now, they are going to be sending Chris home in a few days and we will see. If anyone has any information on other leukemia hospitals, treatment options, or alternative leukemia treatments please feel free to email me.

Thanks for all your prayers and support,



Rumi - Guest House

This being human is a guest house
Every morning a new arrival.
A joy, a depression, a meanness,
some momentary awareness comes
as an unexpected visitor.
Welcome and entertain them all!
Even if they are a crowd of sorrows,
who violently sweep your house
empty of its furniture,
still treat each guest honorably.
He may be clearing you out for some new delight.
The dark thought, the shame, the malice,
meet them at the door laughing,
and invite them in.
Be grateful for whoever comes,
because each has been sent
as a guide from beyond.

This quote from Rumi helps me during times of difficulty or stress. It reminds me that we don't always have to treat each sorrow as if it is the end. Like a guest that moves in and then moves out again, everything is fluid and with it's own purpose. I can manage sorrow better when I keep in perspective that this moment is a fleeting one. No one knows what the next moment will bring but it will surely come, and with it comes the possibility of renewed hope and joy. With the next breath we discover how lucky we are to still be breathing.

In the end, all we have is the possibility of the next breath and the certainty of the current one. "In this breath, all is well."

Namaste dear friends,



Anonymous said...

So sorry that Chris and Mary did not get the best possible news.

There has been a change .... in what could be a positive direction?

There is always hope and the power of science, prayer and positive thinking....... Keep battling Chris!

Thank you for keeping us updated Jan.

A xx

Kristina P. said...

How discouraging. I am still praying for their family.

Deanna said...

I wish I knew more about this awful disease and was so hoping all of you would get encouraging news. Keep the faith, hun. And thank you for the Rumi - Guest House. Very nice.

bodaat said...

I am very familiar with that poem and may have at one point posted on my blog as well. I find peace in it as well.

I'm so sorry that Chris received less than positive news. We're rooting for his health from Arizona and are sending him healthy thoughts, vibes and prayers.


Melissa B. said...

Oh, gosh...sending positive vibes your way~